Bittersweet News

If any of you watch the channel four news, you saw the story tonight about the two month old who got a heart transplant. Ben was in the same NICU room as that baby at Children’s. It is very good news to hear about that child, and know that he can go home soon. It’s very bittersweet to see that, and know that he will recover and lead a somewhat normal life, when Ben’s life is still full of unknowns. It also makes me realize that if we had decided to go with heart transplant for Ben (it was really the only “good” option, and it was really not so good…as you readers know…) he would have still been at Children’s. He would be later on the list than the baby who got the transplant recently. We also don’t even know what kind of chances he would have at being a good candidate. It makes me wonder what two whole months in NICU would be like for us…a week drove me crazy and made me ache to leave him every night. It is exhausting to be there, to see all the other families, to go in and out, scrubbing in each time. Knowing I have to leave Ben at night. Having to hold him around all the lines and monitors he was hooked up to. Ben could go tomorrow and I would still never trade one single day of his “home time” for all the time we had i n the hospital. Not once have Scott and I doubted what we decided to do for Ben, and it seems like there is always something new to remind us how right that decision was.

On a lighter note, we were out for a walk last night and ran into our neighbors (who also just had a baby). Apparently they were talking to someone else in the neighborhood who referred to our street as “fertile”. Kind of funny, since not only do we have a new baby, two of our neighbors do also. Must be the water. Haha

To cheer you up, there are

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To fuss, or not to fuss, that is the question.

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If I fuss, grandpa will get me anything I ask for.
*Note Ben’s very stylish hat. It actually fits a little better, and keeps the sun out of his eyes….

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“You’re taking me for a walk? That’s fantastic!!!”


8 Responses to “Bittersweet News”

  1. dc_chick06 Says:

    He’s too too cute! I hope all continues to go well, and the pictures are wonderful. Especially Ben’s smiles šŸ™‚

    -Brandy Van Camp

  2. Anonymous Says:

    There are always second-guesses as to whether you made the right choice. It sounds like there is no question you guys made the right one. You’re absolutely right about the draining nature of the hospitals. With my Mom, it was an absolutely miserable 6 weeks she spent in Detroit. Your experiences with Ben at home are absolutely priceless and are infinitely more rewarding than the time you would have spent with him at the hospital. We’re all thinking of you!


  3. Anonymous Says:

    He is getting so big so fast! He has such an amazing little smile.

  4. purpletoweluser Says:

    Ben is learning to manipulate the grandparents already? smart boy! šŸ˜€
    He’s so cute in the last pic. aww, he makes me smile šŸ™‚ and very cool hat.

    Ashley Builta

  5. Anonymous Says:

    I love the fact that you are LIVING with Ben, you are such an incredible family…..a schedule is always a great thing, but hard to accomplish. Hope Scott is doing okay back at work. We are always thinking of you. Love, John and Marsha

  6. __sourkisses06 Says:

    omg! Ben is so big and super cute! i am soo happy to hear that everything is well. you and your family are definatly in my thoughts everyday.

    Crystal Stone

  7. ____bemymistake Says:

    Wow, how amazing.
    Ben is definitely big and I’m super beautiful.
    It’s been a while but my brother, Jeff Bray, has always kept me updated on Ben.

    Tiffany Donovan

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